Friday September 19

 Sorry about yesterday....it was a long day and didn't get a chance to write before I crashed.
The ride from Burlington wasn't too bad. We got home and both were on the couch.
He slept down in bed, first-time since surgery!

Kevin was feeling a bit better Thursday so I went to work doing the shopping job with Rachel. As I called and checked on him he was doing ok.
First time he had been outside. Walked to the backyard,  laid (yes, I said "laid" like have to get up off the ground) out in the sun, but it got too hot.  
The next time I called he had made himself some chicken stir-fry. (Yes he had easy foods easily available).
By the time I got home he was feeling poorly. Went right to bed. 
His pain is actually doing ok. He feels weak and drained and very full no matter how small he eats.  His body isn't regulating its temperature very well, one minute cold, next hot. We have read that can be common with spleen removal. 

So today, Friday, similar to yesterday.  But has walked to the mailbox. Some chicken noodle soup has been his most sustenance today. 
His Dad has popped in and at the same time 3 grandboys came to say Hi. (And get a drink😘)
I expect the bed again tonight and improvement tomorrow. I have told Kevin "let's be happy with little steps forward." ❤️

Comments

Post a Comment

Popular posts from this blog

Kevin vs Cancer

Background It was suggested this might be easier for people to follow and be updated. So will give it a try. First a quick back story (as a few people have asked) So....the end of 2017 Kevin had hernia surgery with mesh repair. Had issues with a saroma needing to be drained in 2018. In 2023 he was having pain and thought it was hernia bothering again. They did a scan said "hernia fine...but we ound a mass on your pancreas tail."  They biopsied in Feb 24. Results..."inconclusive" but no cancer. He had a scan in July '24 and no change. A repeat scan in July '25 showed marked increase in size. And a MRI showed adinode carcinoma (not good). Biopsy August 7th revealed cancer but neuroendocrine tumor which is better, more treatable, Slow growing. Can be removed and that is all to be rid of it.  No symptoms  that we are aware of or anything.  We saw oncology for the first time August 29th at UVM in Burlington. We left the hospital that day with a surgery date and a...
Read more

Wednesday 10th

Image
  When I returned at 6am he had had a rough night with dizziness,  nausea and vomiting. Couldn't pee so they had the catheterize him twice😞 They gave anti nausea meds and a patch behind his ear to help with dizziness. He ate some jello, managed to pee on his own, and we walked the loop in the hall! All before 10am!  Then he had broth, walked some more and used bathroom again.  He sleeps a lot in between, which is good.  There is some significant bruising and swelling today. They put a binder on to help with the swelling  He tried mashed potatoes and spinach tonight..just a couple bites.  He is working hard at drinking and walking. There is a lot of pain when he moves around.  But is sleeping in between so that is a good thing. Will help him heal.  He asked for some.pain meds (he didnt really have any during the day) to hopefully have a better night and get some sleep.  I left about 930...they had given him anti nausea meds and pain meds...
Read more

Tuesday September 9

Image
  Tuesday September 9 Arrival at hospital 9:45am. Sister Bobby Jo followed us.  Pre op began around 10:30 He got a intr athecal injection; something new to us. [ delivers a medication directly into the subarachnoid space (the space containing cerebrospinal fluid or CSF) surrounding the spinal cord .  This route allows medication to reach the central nervous system (CNS) ] less side affext as medication being administered traditional routes.  He went back for surgery  around 12:30. Into OR at 1:10. All went well. The surgeon came out and said they removed the tumor and approximately 1/3-1/2 of pancreas and had to do a larger incision because his spleen was "huge". The large spleen is just Kevjn, bot an indication of anything. He feels he got it all but we will wait for pathology to be sure. And he will have a PET scan in 3 months to be sure there is none anywhere else. Kimberly Burgess happened to have to be in Burlington for work so was able to come over to see ...
Read more